Tuesday, June 30, 2009

Bill of Rights for Parents of Kids With Special Needs.

I am stealing this from Bethany, whole stole it from Michelle who asked nicely for it from Ellen.
Just an FYI :-D!

We, the parents, in order to form a more perfect union, establish justice, insure tranquility (and sanity) and promote the general welfare of our families, do ordain and establish this Bill of Rights.
* We have the right to expect our kids to be seen for who they are as individuals, not as labels or diagnoses.
* We have a right to trust our instincts about our kids and realize that experts don't always know best.
* We have a right to ignore the remarks, questions and stares and not give explanations or excuses for why our children are the way they are.
* We have a right to choose alternative therapies for our kids.
* We have a right to roll our eyes straight out of our heads when we encounter certain mothers who brag nonstop that their kids are the smartest students/best athletes ever.
* We have a right to wonder “What if…” every so often.
* We have a right to play aimlessly with our children. Not for therapeutic or educational purposes—just for fun.
* We have a right to blast Bruce Springsteen/Tom Petty/Any Rocker, down a glass of Pinot Grigio, get a pedicure, go out with the girls or do all of the aforementioned at once if that's what it takes to avoid burnout.
* We have a right to react to people’s ignorance in whatever way we feel necessary.
* We have a right to not always have our child be the poster child for his/her disability and some days be just a child.
* We have a right to go through the grieving process and realize we may never quite be "over it." * We have the right to give our kids chores. Even better if they can learn to make breakfast in bed for us.
* We have a right to stretch the truth when we fail to do the exercises the therapist asked us to do this week because we were too darn tired or overwhelmed.
* We have a right to have yet more Pinot Grigio.
* We have a right to fire any doctor or therapist who's negative, unsupportive or who generally says suck-y things.
* We have a right to tell family and friends that everything may not be OK—at least not how they mean it, anyway.
* We have a right to hope for an empty playground so we don’t have to look into another child’s eyes and answer the question, “What’s wrong with him?”
* We have a right to bawl on the way back from the playground, the birthday party, the mall or anyplace where our children’s challenges become glaringly obvious in the face of all the other kids doing their typical-development things.
* We have the right to give our children consequences for their behavior. They may be “special” but they can still be a royal pain in the butt.
* We have a right to take a break from Googling therapies, procedures, medicine and treatments for our kids to research upcoming concerts, exotic teas or anything not related to our children’s disabilities.
* We have a right to talk about how great our kids are when people don’t get it.
* We have the right to not always behave as inspirational icons who never complain or gripe about the sometimes awful realities of raising a child with special needs.
* We have a right to expect quality services for our children not just when they’re infants, preschoolers and elementary school age, but when they’re in older grades and adults, too.
* We have a right to adequate funding for those services and to not have to kick, scream or endure a wait for them.
* We have a right to get tired of people saying, as they give that sympathy stare, "I don't know how you do it."
* We have a right to wish that sometimes things could be easier.
* We have a right to cheer like crazy anytime our children amaze us—or weep like lunatics.
* We have a right to push, push and push some more to make sure our children are treated fairly by the world.
(Compiled in honor of her little boy, Max, and all of our beautiful children, on June 17, 2009.)

Monday, June 29, 2009

Not Me Monday

For more Not Me Monday head over to MckMama!

Is it Monday already??

My son does not love to touch himself any chance he gets.


He has not pee'd all over his bed recently because of his infatuation with his penis.

I did not have to take his bed (a pack n play) outside to wash it down with soapy water to get the urine smell out of it.

I am not going to buy some onesies today for him to wear to sleep so he can't get his hands in his diaper...

Speaking of penises I did not get an email today that said "Get a larger penis for 5.95".. I will not get right on that.

My kids did not pull on a goat's ear or touch where his horns used to be..

I did not finally fold a million 10 loads of clothes that have been sitting on my floor table forEVER.

July is not going to be hectic seriously you should see my google calendar :-X.

My other half was not informed of the closure of his place of employment, they did not close yesterday.

Alana's caregiver did not decide to not show up 3 weeks in a row, nor respond to any of my communications so I am going to assume she has decided to quit and for whatever reason thought it was okay to not tell me.

For those 2 reasons I have not decided to cancel our trip to Portland for the Turner Syndrome Conference in July. The only bright side of this is that there was some great activities planned locally that weekend that we were going to miss but now we can attend!

Tuesday, June 23, 2009

Top Soccer Wrap Up!

The spring Top Soccer (soccer program for kids with special needs) wrap up day!

Walking from the car to the field.. Alana said I like my friends, I love my friends. Priceless!

She loves going up and down the stairs/bleachers.. we made a deal she kicks a goal and then she can go up! The girl in the photos is her awesome "helper" Andrea!

Donni I don't think this is how it's done..

Seriously.. can you be anymore a little boy?? Get your hand out of your pants!


Trophy "ceremony"

Getting her certificate and trophy with her name on it!!

Thursday, June 18, 2009

Yummy Tummy Thursday ~ Peanut (and Almond) Butter Truffle Brownies

Did ya miss me??

Peanut and Almond Butter Truffle Brownies

(Inspired by Laura :-D, although doing 1/2 peanut and 1/2 almond butter was my curious twist!)

These were very yummy! I think they were almost 10 times better after they were in the fridge for a few days.. I had forgotten about them.. forgot about chocolate?? I know OMG that shouldn't be possible..anyway and I took them out after 4 days in the fridge and put them out on the counter and I seriously couldn't stop eating them.. MUCH better then the first day with little refrigeration! I do have to say I enjoyed the peanut butter ones more I think but both were tasty!


Brownie Base
1 box (1 lb 6.5 oz) Betty Crocker® Original Supreme brownie mix
Water, vegetable oil and eggs called for on brownie mix box

(I split this in half for each 1/2 of almond and peanut butters, so I used 1/4 butter, 1/4 peanut butter, 1 cup powdered sugar and 1 teaspoon milk and did the same but with almond butter for the other half)
1/2 cup butter, softened
1/2 cup creamy peanut butter
2 cups powdered sugar
2 teaspoons milk

1 cup semisweet chocolate chips
1/4 cup butter

Heat oven to 350°F. Grease bottom only of 13x9-inch pan with cooking spray or shortening. (For easier cutting, line pan with foil, then grease foil on bottom only of pan. I do this all the time when I make brownies and bars)In medium bowl, stir brownie mix, pouch of chocolate syrup, water, oil and eggs until well blended. Spread in pan. Bake 28 to 30 minutes or until toothpick inserted 2 inches from side of pan comes out almost clean. Cool completely, about 1 hour.

In medium bowl, beat filling ingredients with electric mixer on medium speed until smooth. Spread mixture evenly over brownie base.

In small microwavable bowl, microwave topping ingredients uncovered on High 30 to 60 seconds; stir until smooth. Cool 10 minutes; spread over filling.

Refrigerate about 30 minutes or until set (I think they should be refrigerated for at least a few hours for optimal flavor!). For brownies, cut into 9 rows by 4 rows. Store covered in refrigerator. (I take it out or the fridge about 15 minutes before serving. This allows the chocolate on top to soften a little)

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